Sunday, June 21, 2015

Surfing the Sugah Wave

The best part of Endo appointments is after they are over..and the next three weeks are squeaky clean,filled with promise and hope and resolve..a diabetes clean slate.

That day has come and gone for me.(almost a month into my current "journey.") In the meanwhile,all the promises I made (email CDE! Prebolus! Eat more green things! Do not stuff Twinkies into mouth at midnight and "forget" to bolus!) are a distant memory, I really suck at diabetes improv projects. But then I dropped a pump,& another threw 5 consecutive cartridge error alarms and had to be replaced and my blood sugars were a grand and unmitigated disaster and I needed a breath of fresh air so I dug out my Omnipod pdm,traded supplies for some pods,and gave it another go.

And these have largely been my blood sugars ever since. That's 24 hours where I might briefly go above the high line,versus a daily journey of 100-360 blood sugars. For the most part prebolusing isn't even necessary.(except breakfast) Every thing I do works. (Which is super weird) I think some of it might be 
from pod placement..using my arms because the other places have scar tissue from so much use and it's been good to have that fresh territory.

In the meantime,I had a repeat a1c done this week(diff doctor) and my a1c has dropped (!)0.6 points so it looks like it might be possible to make significant changes by next appointment.(in August)
I have enough pods to ride this wave to summers end and if I break the 7.0 barrier, I am going to talk to my Endo about another RX. I never thought I'd be doing this but right now,this is exactly what my body needs..a break from the rollar coaster. It's also helped immensely that I got the "Sugar Surfing"book and have tried to implement some of those suggestions.

I'm lovin' it. (Well,as much as that's possible.)

Friday, June 05, 2015

Project: Genetics

I've come to the conclusion that I have "Left-side-of-the-body-itis",having had to have had 2 cataract surgeries,1 L.arm ulnar nerve surgery,1 tonsillectomy, 1 C-section, 1 L.eye muscle surgery for double vision,& I'm not entirely sure where the pancreas really is in me but I'm guessing it's toward the left. Also 1 messed up Lumbar Disk affecting strength and motility on the Left Leg although that has much improved,& I'm now in matenence phase (chiropractic) for that. However,I now have a messed up ligament in my left shoulder and it hurts to do anything with it. I told my chiropractor today that I wanted to get it evaluated and what followed was an exam,an adjustment,& a torture device known as traction.(basically a head vice) I was supposed to stay in it for ten minutes(at 10 pressure) but after five I started dry heaving,getting dizzy,and having a pounding headache and no more of that could I stand. He asked me to do three sets of things to make sure I wasn't stroking out(it can happen when you are manipulating the carotid artery),which I wasn't,but it took about ten minutes to recover enough to go home. I then had a headache from heck for the next two hours and horrid nausea. And it didn't help my shoulder pain either. I think this is going to be a slow process,& a headachy/nausea/dizzy one at that as we try to get a pressure I can stand. He told me to roll up a towel to put under my head to help release the pressure,& a specific lifting technique to use. I might have a pinched neck disc as well,if things don't improve we will get an x-Ray. And bonus props for calling me later to make sure I was still alive. I like my chiropractor,the techniques really do help & he knows what he's doing. Would far rather go through this then spine surgery. I'm just wondering how many other left sided things can fail though.

In other news,my Endo does think I have MODY 5 but it will be awhile before I can get specifically tested for it...I am negative for 17Q12 chromosome haplotype deletion but that doesn't completely rule it out,& it's much more expensive and has to be tested through a genetics division.(next appt.: August 28) It is what it is,no rush.

Sunday, May 17, 2015

Day 6: My Favorite Blog Post

If you have been blogging for a while, what is your favorite sentence or blogpost that you have ever written? Is it diabetes related or just life related? If you are a new blogger and don't have a favorite yet, tell us what motivated you to start sharing your story by writing a blog? (Thank you Laddie of Test Guess and Go for suggesting this topic.)

Dear Beanie Baby would be my very favorite blog post of all time.

Because in the beginning, it was this.

Followed by this..

And by ten weeks, it was apparent that this was a human being. (favoritist photo of all time, as it looks like he was smiling and waving at me. TEN WEEKS,and it got much more real.)

Grow..(and blow bubbles)


Almost ready...

And baby!

It was an amazing process,and despite my inability to make perfect the glucose levels in my blood at all times..babies are scrappy little things and most will get through it just fine. (Although going through for an entire 10 months with not one number in the 400-500's was a pretty miraculous thing too.) One of the perks of having diabetes during pregnancy,they did ultrasounds really frequently.

(and my computer is doing wonky things this morning, so please disregard the weird links that lead to pictures. Only link should lead to my original blog post)

Friday, May 15, 2015

Day 5: A Day in the Life of my Food Choices

Today’s topic is Foods on Friday.  Taking a cue from Adam Brown's recent post, write a post documenting what you eat in a day!  Feel free to add links to recommended recipes/shops/whatever.  Make it an ideal day or a come-as-you-are day – no judgments either way.  (Thank you, Katy of  Bigfoot Child Have Diabetes for this topic.)

Welcome. You have now entered the No Judgement Zone.(aka it's so good to be with friends,although if you are a telemarketer intent on immeadietly sending me a email of the latest super food product please don't. I don't really need it. Also I hope this post makes you feel better about your own food choices because we have all been there & some of us stay there.)


Usually 2 packs of this,with milk. Sometimes a muffin,or two cereal bars. Sometimes 2 waffles with SF syrup.
Sometimes a couple eggs(hard boiled or fried)
Diet Coke #1 of the day. 

Lunch: Diet Coke #2
   Cheese and lunch meat sandwich.
   Some sort of chip/salsa/dip combo.
   Sometimes a banana and yogurt.
   Sometimes  leftovers.

Snack: whatever I'm in the mood for,
Chips/lunch meat/cheese/pickle/chocolate/nutritional bar. Diet Coke #3. Water. Juice if low.

Supper: some sort of veggie
             (Cooked or salad)
            Some sort of meat
              (Seafood,ground beef,etc.)
            Frequently pasta
               (I don't rise like I do on
                  Pizza or rice.)
             Caffeine free tea or water.

Dessert(ice cream) if we're in the mood. I don't have a very exciting diet and I know I don't eat enough fruits and veggies so I will try to get those super-packed veggie juices to supplement. (along with probiotics and multivitamins)I like most veggies,but I rarely eat fruit.(with the exception of bananas) Summer time I definetly get more nutritional foods in.

Late Late TV Snack: CVS nuts..wasabi and Buffalo Ranch Almonds being the absolute bomb. I also like sunflower seeds,peanuts,& popcorn although if I'm low some candy is liable to enter the picture. The lower the carb,the less chance I'll wake up 300.

Thursday, May 14, 2015

D Blog Day 4: Changes

Today let's talk about changes, in one of two ways. Either tell us what you'd most like to see change about diabetes, in any way. This can be management tools, devices, medications, people's perceptions, your own feelings – anything at all that you feel could use changing. OR reflect back on some changes you or your loved one has seen or been through since being diagnosed with diabetes. Were they expected or did they surprise you?

In 1924, what did it feel like to receive an expirimental drug that had only been tested on dogs-was it scary?

In 1939, were parents already sick of this "in five years" line?

In 1943, did they dream of a time when their child could be like any other child and eat the piece of birthday cake?

In 1953, were they ever afraid to go to sleep, wondering if their child would have a bad low overnight?

In 1964, did they dream of a device that would tell them the current blood sugar or night?

In 1972, did they ever want to smack the food police?

In 1981, did they ever think that diabetes might still be around, 34 years later?

In 1990, was it social suicide to wear an insulin pump?

In 1995, were pb crackers and oj the first thing people tried to cram down your throat during a hypo?

In 1999, did anyone else stockpile diabetes supplies for Y2K? (besides me)

In 2005, could anyone have dreamed that the failure of the Glucowatch wasn't the worst thing ever and might just

be paving the way to the dawn of the Continuous Glucose Monitor/NightScout/Artificial Pancreas?

So I wonder..what's next for diabetes? Change doesn't come fast enough but it is coming. (in all forms of diabetes) And that gives me hope, because one day I'd like not to have diabetes, and I'd like for my son to have the best tools imaginable if he were to get it. (gene therapy advancement is not as much on researcher's "to do" list as curing T1) It would really suck if they cured type 1 and couldn't cure monogenic diabetes, although that's a whole other can of worms that makes no sense worrying at at the current time. T1 isn't going to be cured any time soon.

Wednesday, May 13, 2015

Day 3: Cleaning House

Yesterday we kept stuff in, so today let's clear stuff out.  What is in your diabetic closet that needs to be cleaned out?  This can be an actual physical belonging, or it can be something you're mentally or emotionally hanging on to.  Why are you keeping it and why do you need to get rid of it?
(Clean up,clean up,everybody everywhere
Clean up,clean up,everybody do your share.- Favorite of pre-K teachers everywhere)
  Oh, how I'd love to clean house on all my diabetes junk.

Bin after bin after bin of stuff accumulated from my 'betes life. I try to organize occasionally and find a home for it if I can't use it myself since it does go into a state of entropy fairly quickly. However,due to the lovely insurance companies screwup you will occasionally still find yourself with about a thousand backup syringes and ONE PUMP SET left due to stupid Edgepark just ignoring your refill order for 17 days,necessitating a panicked call for more. That seems to be part of the mental "joy" that diabetes brings,and as much as I'm ready to ship every piece o'D crap to the incinerator,getting rid of that mental burden would be a greater joy. 

It's there. It's there all the time,and I think that it would be so awesome to clean house both physically and mentally of it all.

Tuesday, May 12, 2015

Keeping it to Yo'self: Dblog Week Day #2

Many of us share lots of aspects of our diabetes lives online for the world to see. What are some of the aspects of diabetes that you choose to keep private from the internet? Or from your family and friends? Why is it important to keep it to yourself? (This is not an attempt to get you out of your comfort zone. There is no need to elaborate or tell personal stories related to these aspects. Simply let us know what kinds of stories we will never hear you tell, and why you won't tell them.) (Thank you Scott E of Rolling in the D for this topic.)

Good rule of thumb: if something could potentially damage the reputation (or otherwise) of another human being, then you have no business sharing it on the 'net. So, about that non-existant reputation that I have...well, I hope its fairly intact. You won't ever see drunk photos on here because there are (thankfully) none, but sometimes I wonder if I've kept my blog really that pristine clean.

I try. I try not to post anything embarressing to those that I care about. And there are things I don't share, because I've promised my husband I would not do so. Its for his comfort and peace of mind, because sometimes I have a hard time not oversharing. I don't have a problem telling you my a1c, or any other number. But the one thing that I rarely share, and its more of the case that I just never felt that anyone else could have this issue to the extent that I my fear of hypoglycemia. It strikes hard, and it strikes fast, and although the last time I ended up on the side of a dextrose drip has been years I still think that it may kill me someday. So what does this mean? It means that I usually under dose, and deal with hyperglycemia just so that I won't have to deal with the low. (when 1 unit plus exercise can drop you over 100 points you just aren't that fond of going by the CDE/Endo's recamondation) I really, really, really, really want to stay alive for my family. And yes, I have a Dexcom, and a pump, and can adjust things and test, treat, as needed. But if you've ever gone from 70 to 33 in 15 minutes (requiring glucagon), had lows that took over 120 carbohydrates to treat, seen numbers under 20, or shook semi-conscous in the arms of an EMT you cannot forget that. I think its kind of a post-traumatic situation that you can't ever just feel ok about. I don't under-dose to lose weight, I under dose to stay alive. My endo does not understand this,given my access to modern technology. ("You have a Dexcom. You don't have to flip out. Take the recommended dose.")

So I struggle, and probably will until there's some sort of Artificial Pancreas that's better at this numbers game then I am. I'm not sure if there are any mental health professionals out there that understand either, I tried that too. They didn't understand the complex relationship with the medication that is never consistent in its dose age needs. I don't know what the answer is,but every day is a struggle between what I know should be done, and not wanting to deal with the resulting hypoglycemia.